The return to Duke went very well. I talked to them about
the ADD medication we had tried and let them know that it didn’t seem to be
that effective, confirming perhaps what the local doctors believed that this
was a structural not a chemical problem. They recommended taking it on
important days if I wanted but that it wasn’t going to be a normal thing.
More importantly the guy who has seen more doctors than he
cares to realize.. In the last two years, 2 neuro
surgeons, 3 neurologists, 3 neuropsychologists, 3 oncologists, 2 general
physicians, 2 ambulances, 4 trips to Duke, dozens of appointments (still not a
month without one) lots of nurses, physicians assistants, physicians aides,
receptionists, (mostly good people), left there with no return to trip to Duke
and showing exactly why I love my Duke oncology team, we revolved it around
their annual 5k in April and they wrote a letter on my behalf stating my
condition was stable. While I actually have a letter in my possession that says
that cancer wasn’t what was left, we decided, I think intelligently that since
the doctors have never had any clear consensus from day one to day now that we’d
go with the most conservative approach because, if on Friday, when this
emergency hearing happens, we can present to the judge that nothing has changed
or gotten worse in regards to my medical conditions.
I played in a camping ultimate
tournament on the east coast while out there. Without fail, everytime I’ve gone
to Duke I’ve also taken a trip to somewhere else, the original trip with my
previous spouse, the other 3 to catch friends on the east coast. Part of that
is for some reason the Raleigh Austin flight is ridiculous and each time it’s
been cheaper or about the same to take a three way trip. A picture here is
where I stayed and it is helpful for the trips to not just be to deal with
cancer. Somehow it’s very cool that the next one is around their 5k… I wore my
Mohawk up there and got reprimanded for the fact that I had sent them no
poster. I will be sending them one.
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It was interesting that the day
after I got back was when Lance Armstrong resigned as head of the board and
Nike drops it’s sponsorship of him etc. I’ve had a few friends (and strangers)
ask me question about that but what can I say? I don’t know anything about
cycling and frankly I don’t care. I’ve met the guy a couple of times but I was
proud of him, whether it was forced or a choice (but the guy started the
foundation so at some level it had to be a choice) for recognizing that
something was bigger than him even though he started. I am a guy who was a
surprise and didn’t meet his dad till I was 15. My daughter was a surprise. Sometimes things have to outgrow,
or at least outlive their origins.
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I am worried about tomorrow but less
than I was when first heard the news. I am worried about cancer but less than I
was when I first heard the news. As this blog has often said who knows what’s
coming but I hope that some of the friends I’ve kept and made along this
journey… that in due time we will be good mirrors because we’ll also have
become old friends.
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