The journey of cancer has been strange for me. The
coincidences that have lined up make it seem like the narrative was almost
meant to be written, the first time I came in first in my running group, the
next day I have a seizure (I still think running fast is the cause of my brain
cancer). The coincidences that line up with Livesrong races, brain cancer
research races, collapsing in workouts, a job and spouse who weren’t very
supportive when this all started and were then separated… keep making me look
up that saying of Einstein on my wall, there are two ways to live life: one as
if nothing is a miracle and one as if everything is… If I have to choose
between the two, I’ll take the latter.
But at my doctor’s appointments, I still will always ask two
questions am I fit to raise a kid (why I get through the day) and can I keep
running (how I do it). I trust my team of doctors enough to where when they say
no, I’ll give up each or both respectively. But until then, I am going to give
it what I have. Yesterday, my schedule called me for a 20 mile run. There are
days where running is hard enough even in perfection conditions. But yesterday
was hot and humid and my stomach wasn’t thrilled so that or the anti seizure
medications make me vomit (or maybe it’s all the chocolate I have). Ironically,
I worry the most on the days I vomit on whether the vomiting means the drugs
have left the system and I should go home and take more (all but one of the vomiting
sessions have been in the evening when I’m about to retake the evening one
anyway).
Still, the weather was horrible yesterday, I was supposed to
do a 20 mile run at a 7:08 pace and it was an incredibly warm day in January,
in the high 60’s at the start where it kept getting warmer and for the first
time ever by choice I took an easier route than the group and had to walk way
too much. I didn’t keep the pace on my worst run in a couple of years but I got
the 20 miles done. At the end of the run, my faith in humanity got shaken a bit.
For all of these workouts that I have biked to or gotten rides to, I just leave
a bag at the beginning of the workout with my wallet, my phone and a change of
clothes. It’s always been there till Saturday. Ironically, what bothered me the
most wasn’t the wallet or cash in there or even the clothes but the phone. I
hate cell phones personally, never having been able to decide whether that or
spandex in plus sizes were the worst invention ever in humanity. But part of
the safety plan we’ve submitted in court documents is that Kiana knows how to
call 911 and while I haven’t had my cell phone every second I’m with Kiana, I
am proud of my batting average. Still, in that suspenders with your belt on,
she uses an old phone of mine to play with and knows that (and thank whoever
set up the system), that 911 calls work even on inactive phones.
Still, the legal issues still are still outstanding and my
attorney and I have decided to continue with the old phrase of you pick the
hills you’re willing to die on and everything else is flexible and there should
be very few hills you’re willing to die on. Kiana’s mother and I made some
progress I hope in that she came over and we had no problems interacting at
Kiana’s birthday party. We’ve offered them a legal waiver for my medical
records regarding cancer, neuropsychological evaluations, and seizures. I don’t
have to do that as my medical records are protected by law but I can see why
her mother would want to see it if our roles were reversed. And frankly if we
ever develop trust, I wish she would be the person I’d call because we’re
always stuck together while we breathe because our connection has her own
breath. The offer hasn’t been accepted
because there was literally a counter offer
that they wanted me to let her boyfriend have access to see my medical records.
And of course, I am not going to hand documents I have legal protection for to
someone who screwed me over in a variety of ways and who has no legal
relationship to anyone I’m dealing with.
So we made that offer, follow Texas law and provide health
insurance, have whatever doctor, attorney, judge and yourself look at my
medical records and drop the custody battle and we can end this now. If they
want to drag this out, well, I’m an endurance athlete. And there may come a day
where I am not fit to parent but that day is not today and I hope not and pray
it’s not anytime soon. I was asked how what my safety plan was without a phone
and explaining the 911 capacity on an inactive phone well, I’ll quote myself
directly:
I can't
guarantee Kiana's safety every moment of the day; no one can. Presidents with
secret service have gotten shot. God knows I'd do whatever I could to protect
her from everything harmful but I can't.
So I had a phone stolen yesterday, I had a rough run where I
walked more than I ever have, but Kiana had a great party and then we went to a
church service. That’s a good day, a great day really. I am working on my
playlist for the Austin marathon, only 5 weeks away. If the weather is like
yesterday or like Boston, I won’t get anywhere near a PR but I’m going to give
it all I had. But one of the songs on there is Steven Curtis Chapman Down to
the Walk:
You can run with the big dogs
You can fly with the eagles
You can jump through all the hoops
And climb the ladder to the top
But when it all comes down
You know it all comes down to the walk
You can fly with the eagles
You can jump through all the hoops
And climb the ladder to the top
But when it all comes down
You know it all comes down to the walk
I’ve gotten to meet some great people through this journey but the best part is that I’ve gotten to know parts of my daughter, my friends, my family better. Yesterday, Kiana had a good party and I walked around after cleaning it up cause 6 year olds don’t clean up after themselves, And tomorrow I’ll walk my daughter to school. And no matter what my running times are, if those walks are what my life comes down to, I can live with that.
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