The media thing continues… oddly enough the local paper
covered me after most of the international ones (
http://www.statesman.com/news/lifestyles/recreation/austin-runner-with-brain-cancer-pushes-daughter-in/nW6bS/).
I like the fact that there is no mythology that I never blinked being created
because frankly that would be dead wrong. A cursory reading of this would tell
you that I’ve thought about quitting a few times, way too many in fact and that
without help, without great doctors, good counseling, without running without
friends and family, I would have ended up dead and wrong. When I was a complete
mess, friends suggested I get counseling, go to church, get laid, get high, get
drunk, get back to running, start smoking… let’s say I did some my mother would
be pleased with and some she’d be less than proud of.

It has been an odd week dealing with things however that are
dead wrong. An image of me was circulating the internet saying that I was a
girl using cannabis oil to beat cancer… While I am parenting a cute little
girl, I didn’t think I looked girly enough to make a girly poster, I contacted
them and they were nice enough to take it down though originally they told me
fuck you. There have been inaccurate details in most of the journalistic pieces
and I’m not one to get stuck on details but while there’s a custody hearing
pending though, I’m certainly not going to let the internet promote that I’m
using illegal substances. And while I’ve gotten suggested 20 cures to cancer which
if I did them all I’d be dead in a few days I imagine. While anyone is free to
take whatever approach they want from all parts of the world and different
substances, and I don’t judge them in any way for it, I trust my doctors. They
are human enough to make mistakes but committed enough to focus; I’m not sure
what else there is to ask. I don’t think they are slaves to pharmaceuticals or
hospital administrators. I don’t know that I trust those guys that much but I
think my doctors, like all of us, have to contain some of who we are but that
the best of us shines through if we’re honest. I saw him on Monday and we had a
great appointment. I got to see the neuro oncologist here in Austin. All the
media guys want to talk to my doctors which I have no great problem with except
that unlike me they have a job and it’s to save people’s lives so I’ve been
limiting who has access to them. This is only the 4
th time or so I’ve
seen Valiant but we’re getting used to each other even though he wears bow ties
but you know bowties are cool. He who has only been my doctor since last
August, interviewed with Comcast this week and he sent me a study I’d never
seen before that talked about 5 mitigating factors out of which I only have 1 which
makes the median survival rate closer to 8 years rather than 4. That doesn’t
sound like much but somehow I was pretty thrilled. I don’t know when that piece
or the headlines news one comes out or if someone will cut them. There’s been
some good jokes about this media thing but my favorite one from a media person
was we were going to do a piece on you until the pope got elected. The other
was a friend asking if all this media stuff is going to my head. It’s not and
frankly I’m not someone who is a fan of things that go to my head.

But with all the doctors who have talked to the media, they
check what I want them to say and I say tell them whatever you want because I
know from day one and until my dying day they’ve understood me and have been
watching out for me. E60 is talking about coming to Duke making a a small
documentary so the slow news will continue for a while. People keep asking if I
get paid for this and I don’t; one that’s against journalistic principle and
two, I am doing it for the same reason that to this day, I attend other cancer
things and read blogs; there’s something that catches the human spirit in a way
that statistics and medical journals don’t. Some of those things help me keep
going and I hope to be passing it forward. I am a lot more comfortable when we’re
focusing on the parenting angle than the athlete or cancer angle because I feel
like the first one is the one I’m getting right more than the other two. People
ask if I’m training harder and I’m not… because I want my legacy to be someone
who helped and someone who raised a kid and so in spare time I volunteer
places. And I am not thrilled about not working by the way. I wanted to get
back to work after getting fired, even started working with the Department of
Associative and Rehabilitative Services until the ex filed this custody hearing
stating I should only have supervised visits and then I let them know that
until this is settled, I’m going to hang out with my kid and that’ll be that.
I met with my attorney Thursday where their latest petition
suggests that I am ignoring what my doctors say by running marathons. Well…
there is a piece where the Duke guys are being quoted in the Wall Street
Journal saying they’re fine with it and there will be a piece on Comcast where
the local guys are also fine with it. There may be doctors in the world that
wouldn’t allow this or would discourage this but not in my case and not my
doctors because they are fucking awesome.

So it’s been a cancer filled week… a medical appointment, a
newspaper appearance, a legal preparation date, a tv interview… a race on
Sunday where it’s been announced I’d be at... Many emails and 2 sit down times
with local survivors that just needed an ear and a beer. Tomorrow I speak at a
young adult cancers summit and I spoke to a bunch of UT students about not
having any excuses for running. Mostly there I actually tried to focus on the
fact that in college I put on 35 lbs, that my daughter did almost a 5k at a
school function, on my friend Matt who had to relearn to walk and talk and did
the marathon. The running and winning a marathon may make a good story but I do
that because it’s where I feel normal, where cancer hasn’t taken a step from
me. My memory functions get mentioned in most articles but I haven’t given up
on those, maybe they won’t get back to where they were but I’m trying. I still
do lumosity most days, still use coping mechanisms, still using a smart phone
to make up for some of the wits I lost. And it may not get back to where it was
but I am going to keep trying.
But I have had some meals with some people who were here
long before this and will be here long after where it also felt normal. And I
go see some brilliant Duke doctors in two weeks. And I am going running in the
morning. Because trying to do it with guidance, with company, with exercise is
how I’ve avoided being dead and wrong and I’m going to keep aiming for that.
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