Is It Cheating?
I’ve long said that I have a lot of bad qualities but
pretentiousness isn’t one of them… and I hope that’s true till my dying day. I’ve
struggled with lots of things since that seizure, this diagnosis, this collapse
of my life. Some of it has been facing demons, some of it has been ignorance,
some of it has been fear. And everything that’s gone right… everything that’s
gone right is where I accepted Abe Lincoln’s old adage that if we don’t hang
together, we’ll hang separately.
When the seizure occurred and I was at the hospital and I
got told of this damn cancer diagnosis, the best and worst thing to ever happen
to me, I told them to rub some dirt in it. I snuck out of the hospital and ran
8 miles with an IV in my arm. My friends were there at the hospital and are
still here and were more concerned about me dying and I was trying to figure
out how to make sure my family was adequately provided for. A friend connected
me to Livestrong and they offered many many things like emotional support,
medical direction, connecting me with someone who had the same diagnosis,
counseling for my daughter. I just wanted to work on logistics of medicine and
finances. And even then I wanted to do it all by myself.
A few days later the Austin ultimate community would announce
a tournament to help raise money for my medical bills, at that tournament the Houston ultimate community would announce
the same thing, then the Toronto community sent a check, then the UT players
would give me a check, then my running community the Ship of Fools would pay
for my plane tickets to Duke. Someone sent a gift card to restaurants so that I
would still go out to eat while dealing with all this. Tons of people would
take me to medical appointments, workouts, home. With the tournaments and the
running community, I asked them why hadn’t they talked to me and they answered
very correctly that if they had I would have tried to stop it. With the gift
cards, I threw them across the room. With each one of the sporting events I
cried both out of broken pride and out of gratefulness and I can’t tell you
which one was greater at any of these events. When they kept happening, I
turned to Todd the executor of my will and the guy who put together the first
event and told him to make it stop. He
ignored that as he promised that he would ignore my wish to be cremated and
flushed down the toilet when anything goes wrong.
My sister Susan said she wasn’t helping with anything other
than my tattoo and I blew her off for months. My brothers and mother wanted to
come to Duke and stay at a hotel near the hospital and I told them I had a
place where they could crash for free even if it was further away. My
neuropsychologist wanted me to get an Ipad (which another friend paid for) and
try lumosity.com to get some of the functions back. When I hurt my IT band
while putting off surgery to run the Livestrong marathon, the doctor offered me
cortisone and I looked up at him and asked if that was cheating? He smiled and
said it was perfectly legal for both amateur and professional sports (but
perhaps showing my pride, I took only one of the 2 he thought was necessary).
I’ve sat and done lumosity day in and day out, trying to
pretend like the neurological rehab is just a matter of effort, gotten faster
at running and better at jokes because those are my coping mechanisms (as
mechanisms go, I’ll take them). In time, I realized my screw-ups and tried to
correct them… Kiana enrolled in Wonders and Worries and she made me realize
what I once told her wasn’t true… that she was a princess. Livestrong’s
counseling classes have helped. Sitting with a minister as suggested by someone
has helped. Matt Naylor ran the last few miles of the 2 Livestrong marathons as
a safety precaution, one qualified me for Boston and one let me take home the
trophy of Cancer Survivor winner.
I’m probably a long way from where I belong but all I can
say 2 years later is that without exception the areas where I accepted help, I’m
doing better than in the areas where I pretended to be, what my neurologist
told me today that I’m not, omnipotent. My compensatory strategies for some of
the neurological deficits I’ve always called cheating. He literally blew his
hand across the air and told me you had a significant part of your brain
damaged.

I tried to take less anti-seizure medication and was found
on the side of the road a few months later. It took the second time of waking
up in an ambulance before I learned to wear a bracelet with contact info. Now
we may be playing with some medication and there’s some possibilities that this
could lower my seizure threshold… if nothing else, I swallowed my pride and
took someone to that appointment with me… maybe I should do that to all
appointments because frankly my doctors have often asked why I show up alone.
And the guy who constantly protests his George Clooney lifestyle (some out of
basic emotional fear, and some out of wondering if it’s just too much to ask to
have someone sign up for so much baggage).
When going through crisis of any sort, accepting a variety
of help is not cheating. Some crisises break people even if you accept help;
that’s called life. I told my doctors here and at Duke that if I didn’t have a
kid I’d be happy to wonder around the Grand Canyon with no meds and die when I
die. But do have a kid and am trying to
do things all by yourself is a good way to get left all by yourself.
The old adage is that it’s easier to give than to receive
and for me that’s certainly true. But taking help isn’t cheating, refusing
blessings is cheating yourself out of the kindness that the universe has given
you. I am still in touch with the Imerman angel I was connected to, still in
love with Livestrong, destroyed a track workout tonight, still helping the
ultimate community the best I can, and above all, still ready to take Kiana to
school tomorrow. To those of you who have been along so far and with life as
unpredictable as it has been… help me to
keep focus on cheating death, not cheating life.
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